Home Sweet Home!

I never thought those words would seem so nice as they did yesterday. When the attending Dr. came in yesterday and said we were free to go home, i was so excited. (I won't tell you that i was already completely packed!) LOL!

For those of you that know me, you know i would NEVER push us out the door unless the dr. said they were comfortable with it... (HA) So, i made sure they all remembered that i knew the drill. Getting home, was great, but adjusting to home life again with 5 people in the house is such an adjustment. It's been a year since i have been home. The days before where i got to come home for days at a time, it was either to pack for vacation, or go to Disney world for our Make a Wish trip, so coming home and unpacking, and getting settles was quite the event.

But, never fear... i think i am getting back into the groove of things around here. I know my husband is glad for me to be home, for the last year he has been the mom and the dad, so he's taken on cooking, cleaning, signing school papers, getting kids to school, and the list goes on. Hopefully now, i can do some of that.

It's hard because i have missed out on all this for the last year, and i feel so lost in my own world. This new world that opened up for us includes giving all IV medications, writing out when /how much medicine i gave, keeping a log of how much he pees, and how often, and if i need to give IV fluids. I mean what happened to getting up, fixing breakfast, making lunch for the boys, and the simple things.

However, this is my new normal, so we will keep doing what needs to be done and not think about it.

Welcome to my world!

Welcome to my blog. This i created for you to all get a look into the world through my eyes. A place for me to show you as a mom what i go through in daily life. We are far from the normal family . We live a very different life from most other families. Some of you that read my blog will know what it's like in many ways to do what i do, others of you will ask me how i do it everyday, and others will completely disagree, but i think this will be good for me to have to let my frustrations out, and just get to be me for once. Though i am not the best writer by all means, i love to do blog, because it helps me get my frustrations out. My life resolves around my 3 boys, my husband, my family , Doctors, nurses, and lots of other medical people.